High overnight readings
Hello All,
My daughter started pumping last Tuesday.We [ok- my
husband ] gets up at 3:00 am to blood test. She is still way high
[300-400 ]despite several basil rate changes.Now she’s at .8 through
the night and a combo of .6, .7, .8 during the day.She is on a ratio
of 1:10 for breakfast, 1:13 for lunch and 1;15 for dinner.She weighs
a little over 90 lbs. The diabetes ed has agreed to let her try some
light activity during the day, bike riding, short walks etc and has
included a pm snack w/a 1:15 ratio.
I understand this all takes time but I want this child
back in camp next week.Am I being unrealistic ? A week of hanging out
with Mom has taken it’s toll on both of us.We don’t need any more
mother,daughter bonding time.Especially with me being the bad guy, "
No snacks, I need another blood test, etc."
She IS going to diabetes camp in two weeks-sleep
away- and I think she needs to be much more set than she is now.Any
word of wisdom would be appreciated.
Thanks,
Doreen
February 21st, 2007 at 6:19 am
Doreen,
Try to hang in there, it takes some time to get all of the basel rates
adjusted to the correct ones for each person. I would talk to the CDE/pump
trainer, maybe the rates need to be adjusted, it is different for everyone,
your cde/pump trainer or dr is the best person to talk to about this. Sorry
that I can not be of more help to you.
I am a camp counselor at a diabetes camp in Pa, has your daughter ever been
to camp before? I can tell you that the camp that I volunteer at has a lot
of medical staff, we have a CDE/certified pump trainer that is there to work
with the kids on the pump, regarding set changes etc, they would help your
daughter to become more independent with her pump. How is she as far as
usuing the pump, does she figure out her own boluses etc? I know at camp we
required minimun 4 blood sugar checks per day, sometimes more often
depending on the circumstances etc, we also do 2am checks depending on blood
sugar readings before bed. The medical staff did not make changes in basel
rates or boluses etc. Again, I would talk to your CDE/pump trainer, that is
your best source of information for questions like these. Sorry, I can’t be
of more help. Have a great one. Chera (pumping in Pa for 4 months)
February 21st, 2007 at 12:48 pm
Thanks. She is going to Clara Barton Camp in Mass. She went last
year and had a great time. I know the staff is just wonderful and
will probably have more luck getting her on track than we will. I do
have a q for you. Will it be a problem for staff to change the site
for her? She always used an injector for shots and now my husband and
I have to insert it for her because she is scared. She is 11yrs old.
Take care,
Doreen
February 22nd, 2007 at 6:42 am
Doreen,
We did have kids that needed help with changing their sets, some that could
)
do it on their own and just needed supervison and some who needed medical
staff to do it for them. I think the key thing is, when you take your
daughter to camp and you are registering to let the staff know that she can
not do it or is afraid to do it on her own so that they are aware of that
from the very begining. The medical staff need to know that. They may also
work with her and have her cahnging her own set by the end of the week,
although they will not force this on her, but maybe that can be a goal for
her to work on while at camp. Sometimes kids aren’t as afraid of something
if mom and dad are not around. (
The camp that I volunteer at is Camp Setebaid there motto is "we are turning
diabetes around" ( the camp name is diabetes spelled backwards) If you have
any other questions about camp just let me know. Have a great one! Chera
February 22nd, 2007 at 3:18 pm
Doreen,
I just read you comment about your daughter not being able to apply her own
sets. What type of set is she using? I personnaly use the MiniMed softset.
These have an insertion tool that make insertion very quick and virtually
painless. I recently requested a few samples of Deisatronics new set but found
myself quite scared to stick myself with it. I tried and it hurt so bad that I
gave up and went back to my softset with the softsetter. My point is see if
there is an insertion tool made for the sets that you all use, it really makes
set changes much easier. Sorry if this a redundant message I really haven’t
paid much attention to this thread.
Doreen,
We did have kids that needed help with changing their sets, some that could
)
do it on their own and just needed supervison and some who needed medical
staff to do it for them. I think the key thing is, when you take your
daughter to camp and you are registering to let the staff know that she can
not do it or is afraid to do it on her own so that they are aware of that
from the very begining. The medical staff need to know that. They may also
work with her and have her cahnging her own set by the end of the week,
although they will not force this on her, but maybe that can be a goal for
her to work on while at camp. Sometimes kids aren’t as afraid of something
if mom and dad are not around. (
The camp that I volunteer at is Camp Setebaid there motto is "we are turning
diabetes around" ( the camp name is diabetes spelled backwards) If you have
any other questions about camp just let me know. Have a great one! Chera
February 22nd, 2007 at 9:18 pm
I appreciate the thought. She has an Animas pump and uses the
comfort set that does not have the insertion tool. We were hoping to
not make her dependant on that but it is a good idea.
Thanks
Doreen
-BTW ,I tried the comfort set that she is using and it was not
painful. OK, I have a lot more body fat than she does.Our diabetes ed
have been steering us away from the soft set because they say it has
to go in deeper and she is thin.What do you think?
February 23rd, 2007 at 7:34 am
I appreciate the thought. She has an Animas pump and uses the
comfort set that does not have the insertion tool. We were hoping to
not make her dependant on that but it is a good idea.
Thanks
Doreen
-BTW ,I tried the comfort set that she is using and it was not
painful. OK, I have a lot more body fat than she does.Our diabetes ed
have been steering us away from the soft set because they say it has
to go in deeper and she is thin.What do you think?
February 23rd, 2007 at 11:04 am
>
> Thanks. She is going to Clara Barton Camp in Mass. She
went last
> year and had a great time. I know the staff is just
wonderful and
> > adjusted to the correct ones for each person. I would
talk to the
February 23rd, 2007 at 7:12 pm
> I appreciate the thought. She has an Animas pump
February 24th, 2007 at 5:49 am
Thank you so much. And you’re so right about the activity. The
diabetes team here wants her pretty non- active to get good base
readings, then they can play around w/numbers due to changes in food
or activity level.
Take Care,
Doreen
February 24th, 2007 at 1:57 pm
My 11yr olds response to your suggestion was "Well that’s just
disgusting". She needs a few more years on her first before using
*those* areas.
Take Care,
Doreen
February 24th, 2007 at 9:49 pm
Doreen have you looked into using the Rapid sets for your daughter. Disadvantage
is that it is a needle and in America they still not have approved the Disconect
feature on
the set. Advantage the needle is very small and reliable. Good Luck Doreen, call
Disetronic they are very helpful and will send you plenty of samples.
Frank
I appreciate the thought. She has an Animas pump and uses the
comfort set that does not have the insertion tool. We were hoping to
not make her dependant on that but it is a good idea.
Thanks
Doreen
February 25th, 2007 at 5:57 am
Doreen if you do call Disetronic also inquire about the Ultraflex sets for your
daughter.
Frank
February 25th, 2007 at 3:29 pm
Doreen,
I just got home to 64 messages and if this has been addressed, I’m sorry for
not reading through everything first. The insertion devices are NOT crutches,
they are aids (helpers). When I was 11 and had the 26g needle (those things
HURT) my folks got an automatic injector (it can be seen at the end of the
Pump picture trail) and the dr. was upset they did. BUT, it put that bugger
inside me without hesitation. There is a Sof-Set that is shorter - 6 mm.
instead of 9 mm. Also the new Quick Set is short and ideal for children.
Disetronic has a new Ultra Set that is short for children, too. The sets are
interchangeable and you don’t have to be a user of their pump.
I’m 62, DMer 50+ years and that set your dtr is using scares me so much I have
not used it yet. It can be very intimidating. So what if she has a little
comfort in life to do the job? (~_^)
{{{{pump hugs}}}}
February 25th, 2007 at 7:58 pm
Animas pumper. >
>
February 26th, 2007 at 3:04 am
> Doreen if you do call Disetronic also inquire about the Ultraflex sets for
your daughter.
The Ultra Flex was the first set I tried and it was very easy to use. I was
pretty nervous about putting in an infusion set, even though I have been
giving injections for 21+ years! The set is all one piece, the needle and
tube is fairly short, and it didn’t hurt at all going in.
I also saw that Minimed’s Sof-Set Micro QR has a cannula that is only 6 mm
long, verses 9 mm on the other Sof-sets. Maybe that would work better for a
child or young person.
Julia
March 1st, 2007 at 1:44 am
I tried the ultraflex and hated it. The cannula is stiffer and caused me more
discomfort .. just my $0.02
Doreen if you do call Disetronic also inquire about the Ultraflex sets for
your daughter.
Frank