New to Group

Hi!
I just joined this group — nice to see there’s a place to go with
questions about pumps — there are so many things that the doctor
can’t help with.
I have had type 1 diabetes since 1990, and I have had a Minimed pump
since 1991. I now have a 507. I’m having a new problem recently
that I wonder if anyone else has had:
I have thickened areas under my skin on my abdomen where I inject,
and it appears to be from repeated injections of the canula set over
the last 10 years. Recently, every time I change my sof-set, my
sugar is very high — 300 - 400, and then it will come down and
everything is fine. If there were a blockage or leak, etc. I would
think my sugars would go — and stay — high. But this is only for
the first couple of hours and seems to be an absorption problem,
maybe from the lumps I’m injecting into?? I have started taking a

large bolus after each new sofset, and that is helping some. I met a
nutritionist soon after I was diagnosed who had worn a pump for nine
years and had to go to shots because she was having absorption
problems. Hopefully, I won’t have to go off of the pump for awhile.
Has anyone had similar problems?

Thanks!
Katherine

34 Responses to “New to Group”

  1. colin_140 Says:

    << have had type 1 diabetes since 1990, and I have had a Minimed pump
    since 1991. I now have a 507. I’m having a new problem recently
    that I wonder if anyone else has had:
    I have thickened areas under my skin on my abdomen where I inject,
    and it appears to be from repeated injections of the canula set over
    the last 10 years. Recently, every time I change my sof-set, my
    sugar is very high — 300 - 400, and then it will come down and
    everything is fine. If there were a blockage or leak, etc. I would
    think my sugars would go — and stay — high. But this is only for
    the first couple of hours and seems to be an absorption problem,
    maybe from the lumps I’m injecting into?? I have started taking a
    large bolus after each new sofset, and that is helping some. I met a
    nutritionist soon after I was diagnosed who had worn a pump for nine
    years and had to go to shots because she was having absorption
    problems. Hopefully, I won’t have to go off of the pump for awhile.

    Has anyone had similar problems?
    >>
    Hi Katherine: Welcome!
    There are lots of other sites you can use for pumping. And a number of
    different infusion sets that you might want to explore. How long do you
    leave your set in? should rotate sites at least every 3 days otherwise you
    can develop what you are experiencing. Good skin care, extremely important.
    And good aseptic technique. Don’t pet the cat when changing your site.
    There’s a slack that the piston in the pump has to take up before it’s really
    pumping. Your bolusing when you change your site is definitely a good idea.
    The other thing in learning what your insulin sensitivity factor is….how
    many mg/dL of glucose will be brought down by how many units of insulin …..
    You should be working more closely with your pump trainer/CDE and
    Nutritionist.
    Invest in John Walsh’s Pumping Insulin. It’s our "Bible of insulin pumping"
    and an excellent resource.
    If you have pockets of blood pooling behind your site when you are ready to
    change it, it’s a good idea to let it bleed out…otherwise another source of
    infection and trauma to the tissue…..hope this all helps….Joan :))))

  2. patience_15 Says:

    Ive been on the pump about 1 1/2 yrs. I do have a problem sometimes w/high
    BGs after a set change. But I had worse problems on shots. Ive been
    diabetic for 33yrs and had those lumps alot! I could not use those spots
    after awhile because the same thing would happen. My BGs would go high if I
    continued to use those places. Since I was taking 3-4 shots/day I was
    running out of places. Ive heard others say there are other places you can
    put your set in. I havent had to do that yet. Hopefully I wont have to for
    awhile. I dont know if this helps at all. Chrissy

  3. Jennie Mui Says:

    Hi Katherine,
    Welcome to the group. I have been type 1 since age 8 (1968) and pumping
    since Jan 1997. I have on occasion experienced what you describe. The
    thickening under the skin is scar tissue and if I go unusually high and the
    boluses don’t bring it down, I switch the site. This just happened to me
    last week. I usually need around 45 to 50 units a day and this particular
    day I ended up with a total of 110 units and BG’s of 400! I finally clued
    in after several hours of bolusing 10 units an hour and then waiting for
    the bg’s to come down that it just wasn’t working. When I switched sites,
    it helped. Do you rotate around alot? Some people use other sites besides
    the stomach. Maybe that would work for you for awhile. Also, how long do
    you leave it in? I find that the longer I leave it in, the more scar
    tissue forms. I’m sure you’ll get lots of advice from the experts on this
    list. I gain so much from them. Well, I hope you’ll work it out so you
    can stay on the pump. Good luck and glad to meet you. –Jeana in Alaska Ü

  4. Olin Ok Says:

    I gave up on softsets many years ago; I found them unreliable.

    But, have you determined that you are taking out the backlash after changing the
    set?

    The rule I was taught was to use 0.8 units to take up the backlash. I had
    found from experimentation that it usually takes up to 4 units to do this. So,
    I no longer just put the number in and wait. I put in about 4 units, and wait
    until I see a bubble of insulin form on the tip of the needle (I use the bent
    needle). Then I KNOW that the backlash has been removed!

    Works.

    David

  5. Jennie Mui Says:

    I didn’t have good luck with the softsets either. I think the needle was
    just too short to get through the flab of my stomach. I also was very
    allergic to the adhesive. I now use the Minimed Silhouettes. I like the
    longer needle and I can put it straight down and it works great. Better
    absorption than the other sets. (I tried all of them) Another mistake I
    made when first starting was lubricating the plunger. I forgot to pull the
    plunger out a couple of times before filling and I think it would kind of
    stick and not deliver the insulin the way it should. Have done much better
    since I now get the reservoir lubricated. Just a couple more thoughts I
    had… Jeana Ü

  6. patience_15 Says:

    > I now use the Minimed Silhouettes. I like the
    > longer needle and I can put it straight down and it works great.

    Jeana,
    I also use the Silhouette but I was taught to put it in at an angle. I cant
    imagine putting that long needle in straight down! I dont even like doing it
    the way I was taught. But I do like the Silhoutte. Dont have to mess w/all
    the tape etc. Chrissy

  7. Jennie Mui Says:

    Yes, you are supposed to put it in at an angle, but I have alot of flab to
    go through and going straight in works so much better for me. It isn’t any
    worse than giving a shot. Just a huge needle. I tell myself, "One, two,
    three, jab!!" and then push! LOL Ü -Jeana Ü
    —– Original Message —–
    > Jeana,
    > I also use the Silhouette but I was taught to put it in at an angle. I
    cant
    > imagine putting that long needle in straight down! I dont even like
    doing it
    > the way I was taught. But I do like the Silhouette. Dont have to mess
    w/all
    > the tape etc. Chrissy
    >

  8. mable11 Says:

    Maybe there was something on the Quick Set that was discussed here earlier that
    I’ve forgotten about…

    but I tried some of the samples when MiniMed sent me the 508. My trainer, a
    non-diabetic, said she had just tried if for a few days
    and recommended it highly. I ordered it and found it to be just great. There
    really is no tape mess at all, it inserts very easily and with
    virtually no pain. The 9mm insert does the trick for me, and I’m of average
    weight.

  9. patience_15 Says:

    You are brave!!! Chrissy

  10. patience_15 Says:

    How does the Quick Set work? I know nothing about it. Do you need something
    special to insert it? I have a 507c….is it compatable w/that? Thanks.
    Chrissy

  11. judith600 Says:

    > The rule I was taught was to use 0.8 units to take up the backlash. I had
    > found from experimentation that it usually takes up to 4 units to do this.
    >

    maybe the 0.8 was meant as the prime AFTER you remove the needle…..

  12. Olin Ok Says:

    No, the initial bolus after insertion was specified separately, at 0.8 units.

    I find that the backlash value can vary from as little as 0.8 to as much as 4.0.
    This makes sense, since every time you replace the syringe, there will be a
    different value of backlash remaining to take up….
    David

  13. Randolph Fawn Says:

    > No, the initial bolus after insertion was specified separately, at 0.8
    units.
    >
    > I find that the backlash value can vary from as little as 0.8 to as much as
    4.0. This makes sense, since every time you replace the syringe, there will
    be a different value of backlash remaining to take up….
    > David

    Is this *backlash value* the same as the *slack* between the arms that press
    against the top of the reservoir and needs to be *tightened* by that prime of
    *up to* 10 units. The only way to get it seated correctly is to run the prime
    until a decent-sized drip comes out. Then after insertion and withdrawing the
    introducer needle, depending on the canula used, that prime goes INSIDE the
    body to fill the emptiness left by the withdrawal. That last prime that goes
    inside the body is what threw me off for about 6 years until I joined the ‘net

    and learned otherwise.

    Jan (~_^)

  14. Olin Ok Says:

    You got it…slack and backlash are different names for the same thing.

    David

  15. elvira_14 Says:

    After reading these messages I am completely confused. I was taught
    the I prime with 5 units then insert and away I go until I need to
    bolus. It sounds like from what I read that you are priming and then
    our giving yourself a prime of so many units and not having the
    meter record it as a bolus. Do I have this figured out right?

    Mary
    pumping since Feb 2001

  16. patience_15 Says:

    Hi Mary,
    I prime 5 like you said (before inserting into me!) then I prime 1u inside of
    me. It takes up the slack of the cannula that is inserted. Im sure others
    will answer this too. Chrissy

  17. Olin Ok Says:

    It seems that this depends on what meter you are using. The earlier ones do not
    record backlash or initial infusion events.

    The important points are:

    1. Take up the backlash. Do this by watching until a good bubble appears at
    the end of the needle. This could be from 0.8 to 4 units. But, watch until
    it happens!

    2. Then, after placing the set into the site, infuse about 0.8 to fill the
    cavity.

    Then, enjoy yourself.

    David

  18. Randolph Fawn Says:

    Mary,
    How are your BG readings for the next several hours after a site change? I ran
    in the 300’s for a few hours for six years because no one had instructed me to
    prime 0.5u INSIDE me after withdrawing the introducer needle. I had used
    straight (metal) needle infusion sets for 10 years and that wasn’t necessary
    when seeing the drip at the end - the insulin was there and ready to go. Then
    I got on here and found out after withdrawing that needle, the canula was
    *empty* and had to be filled *inside* me to take up that emptiness. With the
    silhouettes 9mm canula, 0.8 needs to be primed, and the 0.6 mm canula there
    needs to be 0.3u.

    How long do your batteries last? If not long enough, are you priming the
    tubing with the pump motor or by *hand*? When setting up your changeout, push
    the priming insulin for the tubing through by hand and don’t waste the battery
    power to do it. Then after putting the filled reservoir/cartridge with tubing

    in the pump, there will be a tad of slack when placing the driver arms against
    the reservoir. That needs to be primed with the pump to take up that slack to
    make sure it is seated correctly and you see insulin coming out. Now you are
    ready to insert the set. When you are done and taped down and the into needle
    is withdrawn, THIS is when you need to do that prime INSIDE you. Your manual
    should have the amounts listed correctly. The *how to* on using the Prime
    feature is also in the manual.

    Which pump are you using? Hope this helps. Let us know.
    BTW, my hugsband says a backlash is when gears have a gap and there is a
    backward action as a result. There is no backward action in the reservoir
    against the driver arms, therefore it is slack. (~_^)

  19. Randolph Fawn Says:

    On my previous post I forgot to say I use the Sof-Sets and those need 0.5u
    prime inside me. You can call your pump company’s 800# and ask how much prime
    to fill the empty canula for the particular set you use. It’s not good to
    under/over bolus. ;)
    Jan (~_^)

  20. Raymond Melendez Says:

    Katherine,

    some of the confusion might be the dual use of the term ‘prime’. It
    is being used as

    1) priming of the pump: the preparation of the infusion set prior to
    insertion…as in first you fill the tubing with insulin manually
    (until you get insulin out of the needle); then you prime the meter
    by setting a bolus or prime (depending on the meter) to take up the
    backlash/slack - this is required to properly activate the motor.
    This is when the amount varies, and can be done by watching for a new
    and complete drop of insulin at the needle. I think mini-med
    generally recommends trying 5.0 units as a starting point, but it may
    take more or less.


    2) the priming of the site. this is done after insertion on any
    infusion set that removes a needle, leaving an empty canula. In some
    cases it may be recommend even with a needle set to ‘prep’ the area
    for insulin absorption. For the minimed soft-set the recommendation
    is 0.5 units. This can be programmed as a bolus or a prime (I choose
    to use prime so it doesn’t show in my totaly daily use amount). This
    is the one that varies according to the type of infusion set you use,
    and the lenght of the canula. For individuals who have immediate
    lows after a new site is started this is generally reduced.

    Both ‘primes’ are essential for proper start up of a new site.

    If you ever do an ‘emergency’ resevoir shift without a new site (I’ve
    done this when in a major time/location crunch or short on supplies)
    then you would disconnect your tubing at the quick release or
    equivalent location, and prime the pump, but skip the site prime. Of
    course this isn’t a good general practice because the longer the site
    is used the greater the chances of loss of absorbtion and/or
    infection. But as in life there are always those unplanned events!

    Suzanna

  21. sabine170 Says:

    Mary,
    I do the same as Chrissy to take up the space where the inserter needle was.
    Gail

  22. Brendon Mcclain Says:

    Priming: I was taught to hold the prime button until 5 drops come out
    of the connector and all bubbles are cleared, then I bolus 1u to fill
    the canula after connection. I am getting the impression that the
    folks posting don’t have the luxury of a prime button??

  23. Randolph Fawn Says:

    Yeah - we do have a prime button but why waste the battery power to do it when
    you can shove it by hand. The prime then can be done after the
    reservoir/cartridge is placed in the pump and prime until 5 drops come out.
    The 42" tubing holds 20 units of insulin - that’s a lot of battery power
    unnecessarily consumed. On my 507C for the prime I push the down arrow for 10
    units and stop it when I see enough come out. The amount to fill the canula
    inside your person after the intoducer needle is withdrawn is done with the
    prime button, too. (~_^)

  24. Brendon Mcclain Says:

    I see your point regarding batteries. However, I have not experienced
    any problems with battery usage by using the pump to prime. I use the
    Animas R-1000-A, which uses the typical #357 battery. I have been on
    the pump for 2-3 months and have only changed the batteries once.
    Maybe the MiniMed and Disetronics use more battery power?? I do know
    that the batteries was one of the deciding points in choosing the
    Animas over the Disetronics. (Availability mainly) I have also been
    using the 24" infusion set, mainly, but do also use the 43". My
    original order for supplies contained both lengths. I was leaning
    towards the 24" sets, but both have their benefits.

  25. colin_140 Says:

    << After reading these messages I am completely confused. I was taught
    the I prime with 5 units then insert and away I go until I need to
    bolus. It sounds like from what I read that you are priming and then
    our giving yourself a prime of so many units and not having the
    meter record it as a bolus. Do I have this figured out right?

    Mary
    pumping since Feb 2001 >>
    Hi Mary: the best way to explain is that you should saturate the new site
    with insulin to compensate for the interruption in pumping and absorption.
    Some of us are more sensitive to insulin than others, and some sites are more
    sensitive to insulin absorption than others. Each of us varies, and there is
    no set minimum amount to bolus. Just remember less is better until you have
    it all fine tuned…Joan:)

  26. Randolph Fawn Says:

    You changed once in 2-3 months - I don’t change at all for 2-3 months. Mine
    takes two 357’s that I get at our supermarket @ $1.47 Eveready/Energier zinc
    oxide.

    > Maybe the MiniMed and Disetronics use more battery power??

    I have a MM 507C - a backlight is on it but I rarely use it - which would also
    consume power. I think we all come up with tips and tricks to make it go more
    smoothly. (~_^)

  27. Brendon Mcclain Says:

    Very true regarding tips and tricks!! I use the same batteries, but 4
    instead of 2.

  28. Randolph Fawn Says:

    > Very true regarding tips and tricks!! I use the same batteries, but 4
    > instead of 2.

    Are you saying then, you are using 8 batteries compared to my 2? (2-3 months
    you’ve used 8 - I’ve used 2) hmmmmm…. To each his own. ;)

  29. Brendon Mcclain Says:

    I have used a total of 8 since starting. I did also have some
    problems with the original pump and had to prime several times, so I
    think the batteries were drained unnecessarily. See ya!!

  30. Olin Ok Says:

    No, I don’t have the ‘luxury’ of a prime button! I have a Minimed 507, soon
    to be a 508; then I will have that luxury. Is it really a luxury? Sounds
    like a frill to promote the new model. Marginally useful, good selling point.
    I guess if you keep close tabs on your daily dosage, that would be useful, but I
    can estimate it just as well.

    David

  31. Olin Ok Says:

    Jan,
    I think you are using the term ‘prime’ when you really are talking about
    backlash in your example. Prime (to me) means filling the tubing from the
    syringe before installing it in the pump. Backlash means taking out the
    mechanical slack in the pump after installation.

    David

  32. Olin Ok Says:

    Jan,
    You say you have TWO batteries; don’t you mean THREE?

    With my 507 I seldom get much more than 6 weeks battery life, but I do use the
    backlight frequently. Very handy in movie theatres, dark restaurants, and
    walking on the beach at night.

    David

  33. mable11 Says:

    You need the "Quick-serter" which is just a gizmo that auto-inserts the cannula.
    You can choos a 9mm or 6mm size along with tubing
    at 43" or 23" . Call you MiniMed rep or maybe they have this on their web site.
    I found out about it when I first ordered my supplies.

  34. mable11 Says:

    I’m new with any pump, but my 508 is great.

    You can manually (without using up batteries) press the injector of
    the reservoir or the PRIME button to fill the tubing after the
    reservoir is in the pump and before inserting into your, say,
    stomach, so that it doesn’t count in your DAILY BOLUS.

    I must also "prime" to get those LEAD SCREWS that pump the insulin
    into me set up properly. You can call it backlash or anything
    you want. Each company may have its own definition/determination.
    Minimed says to use the PRIME screen, so some of us say
    "prime’.

    As mentioned before by someone, the lead screws have to be in
    position and pumping insulin out of the needle before insertion is

    made.
    The manual suggests 5U. However, if even one decent drop of insulin
    shows at the needle, on the 508 you can simply press a button
    2times to stop that influx, insert and get going.

    I hope that helps even people who have another make to understand
    what (my) 508 does regarding PRIME. There are so many pumps
    out there, it is really important that each person either read or
    reread their manual, or get in touch with their manufacturer. I
    believe
    all are available on a 24 hour hotline. There is probably a
    technical help line, too. MiniMed has one.

    Audra
    MiniMed 508 since April 26/01

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