Hi everyone!

I’ve been out of the loop for about 3 weeks. Just starting to try to
catch up. Lots to read! I’ve missed you all. I’ve been struggling
with a lot of issues, mostly emotional I guess.

Anyway I have a new ‘twist’ to my med history. I had a heart cath on
Thursday, and although there are no signs of any arterial build up
(with 17 years of iffy controlled diabetes that’s something!), I now
have a diagnosis of cardiomyopathy. The theory is that it is a
familial type. My last echo was less than a year ago and there was
no sign of it then. I won’t have any in depth information until June
14, when I see both my new cardiologists and they can discuss
treatments, etc. (I am blessed with 2 due to the cardiac autonomic
neuropathy and the cardiomyopathy!) Right now I’m just feeling very
fearful, and uncertain of what to expect next. With all the issues I
struggle with daily, I’m questioning my ability to add the new combo

and still function acceptably at work. I know that I will come
around and it will work out, but … well you all know how the
emotional downs go!

Basically, I’m glad you are all still here, and look forward to
catching up…it helps to know that there are others out there
dealing with the same day-in/day-out issues. It also helps to get
some of the focus off myself!

Also, if any of you have any experience or information re:
cardiomyopathy (not resulting from heart disease or high blood
pressure) please pass it along. This is going to be one of those
difficult to explain/educate my friends and co-workers on!

Thanks,
Suzann

One Response to “Hi everyone!”

  1. Blair Shantel Says:

    Have any of you guys tried Disetronic’s new infusion
    set, the Ultraflex Soft? How is it compared to the
    Tender?

    -Jim

    =====
    It’s a big world out there. Places to go. People to tower over.

    -Billy Crystal

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