Arthritis?

Hi!

I generally lurk about here, but now I’m just wondering…..

For the past several months, I have been having pain in the muscles (I
thought) in my upper legs, and particularly in my left shoulder. Also
my neck at times. My endo (a WONDERFUL man) sent me to an orthopedic
surgeon, who decided that his specialty wasn’t what I needed, so he
sent me to a rheumatologist. She has run some blood tests, declared
my left shoulder nearly useless (probably true - I am learning to
shampoo my hair with one hand!), and has made a first stab at
diagnosing this as "inflammatory rheumatoid arthritis" while she
continues testing to ensure that it isn’t really lupus(!). None of
this has made me very happy, but she has put me on a low dose of
prednisone, which has not interfered with my BG’s (yet), replacing 10

or more ibuprofen, which I had been taking each day, previously.

I am a 45-year old female, having DM for 32 years, pumping for nearly
six years. I take thyroid replacement hormore. I have had three
healthy babies, and fortunately have not had any significant
complications in this whole time. My retinas are perfect (lucky me!)

Have any of you had an "early" onset of arthritis like this? I have
been reading about lupus, and the doctor assures me that she is being
overly cautious about the diagnosis - not a bad thing… I am not
sure what she means by "inflammatory" arthritis, since I think I am
reading that all arthritis is inflammatory. I am hoping that if this
is "inflamed" that at some point (perhaps when its warmer) it may
"deflame" and I will be more comfortable for awhile.

The onset of this was overnight. I went to bed one night in December,
and I was fine, and when I woke up, I was in agony (not a word I use
lightly, either, may I add) This also seems weird to me. I thought I
would work up to this sort of condition (I am worse off than my 87
year old mother!)

Do any of you have suggestions on where I might go to get reliable
information? I get the impression that there are a lot of quacks out
there regarding arthritis. Obviously, the Arthritis Foundation is
good, but have you found others?

Thanks in advance, everyone! It really does mean a lot to have
support. I have never been much of a group-goer, and this is easier!

Joan Jakubowski in Illinois

46 Responses to “Arthritis?”

  1. Dane Karlene Says:

    Joan,

    I had the "frozen shoulder" that is so common in diabetics and it showed up just
    as you describe. I was never tested for any thing else. Did anyone think to
    see if it was "frozen shoulder"?

    Hi!

    I generally lurk about here, but now I’m just wondering…..

    For the past several months, I have been having pain in the muscles (I
    thought) in my upper legs, and particularly in my left shoulder. Also
    my neck at times. My endo (a WONDERFUL man) sent me to an orthopedic
    surgeon, who decided that his specialty wasn’t what I needed, so he
    sent me to a rheumatologist. She has run some blood tests, declared

    my left shoulder nearly useless (probably true - I am learning to
    shampoo my hair with one hand!), and has made a first stab at
    diagnosing this as "inflammatory rheumatoid arthritis" while she
    continues testing to ensure that it isn’t really lupus(!). None of
    this has made me very happy, but she has put me on a low dose of
    prednisone, which has not interfered with my BG’s (yet), replacing 10
    or more ibuprofen, which I had been taking each day, previously.

    I am a 45-year old female, having DM for 32 years, pumping for nearly
    six years. I take thyroid replacement hormore. I have had three
    healthy babies, and fortunately have not had any significant
    complications in this whole time. My retinas are perfect (lucky me!)

    Have any of you had an "early" onset of arthritis like this? I have
    been reading about lupus, and the doctor assures me that she is being
    overly cautious about the diagnosis - not a bad thing… I am not
    sure what she means by "inflammatory" arthritis, since I think I am
    reading that all arthritis is inflammatory. I am hoping that if this
    is "inflamed" that at some point (perhaps when its warmer) it may
    "deflame" and I will be more comfortable for awhile.

    The onset of this was overnight. I went to bed one night in December,
    and I was fine, and when I woke up, I was in agony (not a word I use
    lightly, either, may I add) This also seems weird to me. I thought I
    would work up to this sort of condition (I am worse off than my 87
    year old mother!)

    Do any of you have suggestions on where I might go to get reliable
    information? I get the impression that there are a lot of quacks out
    there regarding arthritis. Obviously, the Arthritis Foundation is
    good, but have you found others?

    Thanks in advance, everyone! It really does mean a lot to have
    support. I have never been much of a group-goer, and this is easier!

    Joan Jakubowski in Illinois

    Search:

  2. patience_15 Says:

    << The onset of this was overnight >>

    Joan,

    Ive heard from some of the people on here about something called frozen
    shoulder that diabetics can get. Anyone? Chrissy

  3. patience_15 Says:

    << Frozen shoulder is a common DM complication >>

    Ok Jan got it. Thanks. Chrissy

  4. Jennie Mui Says:

    I have "frozen shoulder" and I had a cortizone shot (which was useless) and
    physical therapy (which was GREAT) to help loosen it up. My problem was
    that I didn’t keep up the exercises, so it came back but not near as
    painful. I think my shoulder position was pinching a nerve because
    sometimes my whole neck and left side of the face would hurt. Here is a
    quote that I just happen to read this morning in the May 2001 (page 25)
    Diabetes Forecast magazine that might help understand what may be happening
    to you. Good luck, Jeana——–:

    Robert J. Tanenberg, MD responds, " People with diabetes do have an
    increased incidence of shoulder and hand problems. Two types of shoulder
    problems are frozen shoulder (adhesive capsulitis) and calcific
    periarthritis. Frozen shoulder occurs in about 20 percent of people with
    diabetes versus only 5 percent of non-diabetic individuals. Likewise,
    calcific shoulder periarthritis is three times more common in people with

    diabetes than those without diabetes. Both of these conditions may cause
    shoulder pain and limit movement of the arm away from or behind the body.
    Just as people with diabetes glycosylate their hemoglobin to form HbA1c
    (glucose molecules attach to hemoglobin), they may also glycosylate other
    proteins. One of these proteins is collagen, a key substance in cartilage
    and tendons. It has been noted that people with diabetes have increased
    glycosylation of collagen or deposition of abnormal collagen around joints,
    which leads to stiffening and limitation of joint mobility. Other studies
    indicate that shoulder problems are more likely to occur in people with
    long-standing diabetes, even if their glucose control is good. These
    conditions are treated by steroid injections into the joint followed by
    physical therapy. In a small percentage of those with frozen shoulder,
    however, the condition becomes so severe that orthopedic surgery is
    required. " (it went on to talk about trigger finger)

  5. jerrold16 Says:

    Jan, I too have arthritis. Unfortunately it runs in the family. It’s funny
    that I’ve had diabetes all these years, and the arthritis is what put me on
    disability!

    Rhematoid arthritis unfortunately does strike early, often in the early 30’s.
    Also, it is slightly unusual to strike suddenly, but not unheard of. When I
    was originally diagnosed, I went from being fine to totally unable to walk in
    about 3 days. (And yes, I can walk now after beginning treatment.) I have
    gone to bed at night being fine, had a flare-up, and then woke up the next
    morning with my hand so curled up I couldn’t open it.

    Don’t despair, though. Like diabetes, if you have to have RA, now is the best
    time to have it. In the last 5 years, there have been great strides made in
    meds and treatment therapies.


    FYI, I’m 44 next month.

    Patrick

  6. patience_15 Says:

    << it went on to talk about trigger finger) >>

    I have that and finally had to have surgery for it. Chrissy

    PS: Ive been having some pain in my shoulder on and off. I hope its not the
    begining of anything. Probably is but hope its not. It happens when I try
    and move my arm up. Dont know. Im not going to get completely worried about
    it unless it gets worse. I told my regular dr about it but that was b4 I
    knew about frozen shoulder. Its good Im on here so I get this info,
    otherwise alot of us would be in the dark about some of this stuff.

  7. Randolph Fawn Says:

    Chrissy wrote:
    >>> I told my regular dr about it but that was b4 I knew about frozen
    shoulder. Its good Im on here so I get this info, otherwise alot of us would
    be in the dark about some of this stuff. >>>

    My frozen shoulder was in ‘73 and lasted 2 years. I had shortwave treatments
    at the Chiropractor’s (shoulderologist) as well as manipulation. I had no clue
    what it was until I got on the ‘net 2 years ago. Another possibility is
    Fibromyalgia - pain in the joints and is common to DMers.

  8. patience_15 Says:

    << Fibromyalgia - pain in the joints and is common to DMers.
    >>

    It is? I didnt know that. Chrissy

  9. Carlos Kiara Says:

    Chrissy,
    What exactly is trigger finger?
    Gail

    >I have that and finally had to have surgery for it. Chrissy

  10. nicky8 Says:

    Does anyone in the group have trigger finger?
    Amanda

  11. patience_15 Says:

    << What exactly is trigger finger?
    >>

    Well the symptoms are when you try and bend your finger it get stuck in a
    bent postion. The only way to unstick it for me is use my other hand and
    pull. Our tendons run thru a sheath so when we bend them the tendon moves up
    and down. In trigger finger the sheath narrows so the tendon hangs up and
    gets stuck. It can be painful. I suffered w/it for a long time. I did get
    cortisone shots for it for a while but as you all know it raised my BGs
    really high. It was also very very painful!!! I also had trigger finger in
    my wrist. I would almost scream in pain when the dr would give me the shot.
    I finally said I cant take this anymore and had surgery which totally
    rectafied the situation. Ive had 2 surgeries for this. The dr said usually
    once you have the surgery it doesnt reoccur. But since I have 10 fingers and
    2 wrists it could happen in any of those places and I would have to have

    surgery for it each time. So far its been several years since it has
    happened. I hope it stays that way. Chrissy

  12. patience_15 Says:

    << Does anyone in the group have trigger finger?
    >>

    I do. Chrissy (See previous post.)

  13. nicky8 Says:

    Thanks Chrissy I read your post, I have recently been diagnosed with trigger
    finger, I too had the cortisone shot, just one! I really don’t want to take
    anymore cortisone, so I think after speaking with my doctor I will probably
    have surgery! I only have it in one finger! Does it usually happen in more
    than on finger after a period of time? Just curious, because the doctor I
    went to was a yes man! Thanks for answering!
    Amanda

  14. Carlos Kiara Says:

    Chrissy,
    I have started having severe cramping and it draws my first two fingers on
    both hands down and sometimes it feels like it is in my wrist. I can pull
    them in the other direction, but they will draw again till the cramping is
    over. This may last anywhere from five min. to twenty min. I cannot see any
    connection to what I am doing. Is this trigger finger?
    Gail

  15. Randolph Fawn Says:

    Gail,
    With the amount of water pills you are taking, do you suppose it’s cramping
    like legs/feet at night due to potassium/water loss? That’s why I have the
    Quinine pills that I have found out I cannot take without vomiting / passing
    out!!!
    Jan (~_^)

  16. Carlos Kiara Says:

    I definitely plan on asking the Dr. I am having my blood drawn next week
    then see my internal med. dr the next week, then my endo the next. Got alot
    to go over, breathing problems and chest pain. My potassium has always been
    on the high level of normal and they alway watch it, never have taken any
    potassium and I have been on diuretics for 25 yrs.
    Gail

  17. patience_15 Says:

    << I only have it in one finger! Does it usually happen in more
    than on finger after a period of time? Just curious, because the doctor I
    went to was a yes man! Thanks for answering!
    Amanda >>

    I dont know if it usually only happens in one finger. For me the first time
    I dealt w/it it was one finger on each hand and in one wrist. I went ahead
    and had them both operated on at the same time. Man talk about indisposed!!
    I could hardly do anything. But it was worth it. The second time I had it
    in one finger (I think) Im kinda getting mixed up. Oh well suffice it to
    say Im glad I had the surgery. If I have to do it again (hopefully not) I
    will. Good luck. Chrissy

  18. patience_15 Says:

    << This may last anywhere from five min. to twenty min. I cannot see any
    connection to what I am doing. Is this trigger finger?
    >>

    I dont really know Gail. My symptoms were my fingers sticking when I would
    bend them. They would not do anything on there own. I would check w/your
    dr. I ended up going to a reumatologist for my trigger finger. Chrissy

  19. Randolph Fawn Says:

    Chiropractors (wristologists) can help a lot for carpal tunnel syndrome. BTDT.

  20. Krystal Jesica Says:

    BTDT??
    fp

  21. Krystal Jesica Says:

    BTW, Jan, I like your "Apology To China" right on the money!!
    fp

  22. Randolph Fawn Says:

    Been There, Done That

  23. Randolph Fawn Says:

    I’m a good *passer onner* - ’tweren’t mine. (~_^)
    Jan

    > BTW, Jan, I like your "Apology To China" right on the money!!
    > fp

  24. Krystal Jesica Says:

    I figured that. but it’s still right on the money!!

  25. Bert Gould Says:

    Chrissy,

    Does trigger finger ever have just a single episode and then never bother you
    again? I’m just curious because of something that happened with my hand before
    Christmas. I was painting an ornament with some of those stained glass paints
    in
    the squeeze bottle and I had a fine tip on it to make thin lines. I had put a
    lot of pressure on the bottle for a lengthy period of time to draw the design.
    When I was done, I wasn’t able to let go of the bottle. I had to use my left
    hand to pry fingers from around the bottle and was still unable to move them for
    a long time. I haven’t had that problem since that one time (I also haven’t
    been
    doing the same painting either). Could that be trigger finger or just regular
    cramping?


    Connie

  26. nicky8 Says:

    Chrissy,
    I think that I will probably have to get the surgery, it sounds like ti has
    helped you a lot! Thank you for your input I really appreciate it!
    Amanda :)

  27. patience_15 Says:

    << Does trigger finger ever have just a single episode and then never bother
    you
    again? I’m just curious because of something that happened with my hand
    before
    Christmas. I was painting an ornament with some of those stained glass
    paints in
    the squeeze bottle and I had a fine tip on it to make thin lines. I had put
    a
    lot of pressure on the bottle for a lengthy period of time to draw the
    design.
    When I was done, I wasn’t able to let go of the bottle. I had to use my left
    hand to pry fingers from around the bottle and was still unable to move them
    for
    a long time. I haven’t had that problem since that one time (I also haven’t
    been

    doing the same painting either). Could that be trigger finger or just
    regular
    cramping?
    >>

    Well when it first developed in me it would come and go then it just got
    worse and didnt leave. I hope in your case its just because you were using
    your hands for awhile w/alot of pressure. Just be aware of it I would say.
    I really wouldnt worry about it unless it would continue and not go away.
    Chrissy

  28. patience_15 Says:

    << I think that I will probably have to get the surgery, it sounds like ti
    has
    helped you a lot! Thank you for your input I really appreciate it!
    Amanda :) >>

    No problemo Amanda. It really isnt that bad and very much worth it. Good
    luck and let me know when you do it. I will pray it goes very smoothly.
    Chrissy

  29. mable11 Says:

    "frozen shoulders", "trigger fingers", and little bumps on our palms. All
    related to long standing DMers. Had it all. My horrorscope
    says that I have problems with my hands. So I knew the possibilities a long
    time ago… long before I ever had the frozen shoulders, etc.
    My recent (as in "now") frozen shoulder has developed since Christmas when my
    Honey and I were dancing at a wedding. Knowing the
    feeling of that lack of motion range, I’ve been going to Physio for a couple of
    weeks and it is already better. About 12 years ago I let
    the pain develop for about 3 years and ended up doing the ortho surgery under
    gas. The tearing of the scar tissue wasn’t bad… but
    the physio for the next 3-4 months was excrutiating. To our friend who thinks
    he/she has arthiritis–run, don’t walk for treatment
    now.

  30. Dane Karlene Says:

    "bumps in our palms"??? What is that? I have one and I was getting scared
    about it.

    "frozen shoulders", "trigger fingers", and little bumps on our palms. All
    related to long standing DMers. Had it all. My horrorscope
    says that I have problems with my hands. So I knew the possibilities a long
    time ago… long before I ever had the frozen shoulders, etc.
    My recent (as in "now") frozen shoulder has developed since Christmas when my
    Honey and I were dancing at a wedding. Knowing the
    feeling of that lack of motion range, I’ve been going to Physio for a couple
    of weeks and it is already better. About 12 years ago I let
    the pain develop for about 3 years and ended up doing the ortho surgery under
    gas. The tearing of the scar tissue wasn’t bad… but
    the physio for the next 3-4 months was excrutiating. To our friend who thinks
    he/she has arthiritis–run, don’t walk for treatment

    now.

  31. Randolph Fawn Says:

    I have a bump on my thumb joint near the nail. I was told it is a ganglion.
    Anyone else?

    > "bumps in our palms"??? What is that? I have one and I was getting scared
    about it.
    >
    > Catie

  32. mable11 Says:

    "bumps in your palms" - These bumps feel like little pearl-sized
    bumps that, on me, are between the 2 top lines in my palm. I have a
    few
    of them. My Dr. explained something to me that sounded similar to
    "trigger finger" symptoms and causes. (I can’t remember exactly
    what, sorry). Anyway, I was told that they are doing no harm because
    they are not restricting finger movement. If that ever happens,
    then they will be surgically removed.
    RE: SURGERY As a long time Type 1 (42 years), I hate hospitals and
    have avoided them. When I found so much relief from the pain I
    had for so long by getting the trigger finger "released", I now don’t
    bother waiting. I don’t deserve the ongoing, unremitting pain. The
    surgery is small, a few stitches that are out in a week, and total
    movement immediately after surgery. Hate hospitals, hate pain, love
    relief. WORTH IT WORTH IT WORTH IT!!!

    Audra
    getting my pump by next Monday.
    …am I excited!!

  33. Carlos Kiara Says:

    I have had a ganglion removered from my palm near my first finger on my
    left hand.
    Years ago, no problem and none has come back.
    Gail

  34. nicky8 Says:

    Chrissy,
    One quick question about the surgery, are you awake during it?
    Amanda :)

  35. patience_15 Says:

    << Physio >>

    What is that? Chrissy

  36. patience_15 Says:

    << I have a bump on my thumb joint near the nail. I was told it is a ganglion.
    Anyone else?
    >>

    I have never heard of bumps on palms before. Chrissy

  37. patience_15 Says:

    << One quick question about the surgery, are you awake during it?
    Amanda :) >>

    No, I was totally put to sleep. Chrissy

  38. Randolph Fawn Says:

    I have found that when I INSIST on being put to sleep they cooperate with me. ;) Jan H (~_^)

  39. colin_140 Says:

    Gail,
    With the amount of water pills you are taking, do you suppose it’s cramping
    like legs/feet at night due to potassium/water loss? That’s why I have the
    Quinine pills that I have found out I cannot take without vomiting / passing
    out!!!
    Jan (~_^)
    >>
    A favorite remedy that’s available from health food stores and recommended by
    Dr. Joe Prendergast at diabeteswell.com
    L-arginine 1000 mg 2x/day
    Vit E 400 IU 2x/day
    Vit C 500 mg 2x/day
    Aspirin 81 mg 2x/day
    after 2-3 days on this regimen, the leg cramps that used to make me up with
    my toes curled in all directions just stopped!!!

    It’s a wonderful thing and one that is known to help with the effects of
    cardiovascular disease and diabetes….Joan :)))

  40. Krystal Jesica Says:

    Joan, do you know a good (reasonable Priced) source for this stuff in the
    Northeast?.
    fp

  41. colin_140 Says:

    << Joan, do you know a good (reasonable Priced) source for this stuff in the
    Northeast?.
    fp

  42. nicky8 Says:

    Thanks Chrissy, for your reply, I had read somewhere that patients were awake
    during the procedure so that they could move there fingers and tell the
    doctor if it hurts or not! I got the information online, Ivguess everyone
    does it differently!
    Amanda :)

  43. Carlos Kiara Says:

    Joan,
    I take vit E, can’t take the tablets vit C, but do eat something with lots
    of vit. C daily. I know that is crazy, but it does not hurt my stomach. I
    buy clementenes, which are like an orange, but sweeter and they do not hurt
    my stomach. I can’t take aspirin, but will look into finding the other you
    mentioned.
    Thanks.
    Gail

  44. colin_140 Says:

    << I take vit E, can’t take the tablets vit C, but do eat something with lots
    of vit. C daily. I know that is crazy, but it does not hurt my stomach. I
    buy clementenes, which are like an orange, but sweeter and they do not hurt
    my stomach. I can’t take aspirin, but will look into finding the other you
    mentioned.
    Thanks.
    Gail

    >>
    Hi Gail:
    I can’t take regular C either, but there is rose hip C and there is ester

  45. colin_140 Says:

    << I take vit E, can’t take the tablets vit C, but do eat something with lots
    of vit. C daily. I know that is crazy, but it does not hurt my stomach. I
    buy clementenes, which are like an orange, but sweeter and they do not hurt
    my stomach. I can’t take aspirin, but will look into finding the other you
    mentioned.
    Thanks.
    Gail

    >>
    Hi Gail:
    I can’t take regular C either, but there is rose hip C and there is ester
    again with the touch pad!
    ester C which is a gentler form.
    are you allergic to aspirin or are you on coumadin??
    if it’s stomach, ecotrin - which is coated so it doesn’t dissolve in your

    stomach, but rather in your intestines, shouldn’t hurt.
    There is a timed release C too.
    you’d have to eat quite a few clementines to get 1000 mg of C per day.
    Oranges have a good C content, and potassium that we’ve been talking about.
    That and bananas are the highest. Other high potassium foods, but those are
    the highest. That’s why we tell patients to take their blood pressure meds
    with either one daily to replace what they lose.
    Joan:)))))

  46. Carlos Kiara Says:

    Joan,
    I also have on the high side of potassium, even though I have taken high
    doses of diuretic for years. So I try to watch the potassium.
    Gail

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