Comments on: a little down

By: Kristopher Wyatt

Kristopher Wyatt — Thu, 18 Aug 2005 12:37:50 +0000

Footprints wrote:

Hi, I’m very new to the list and I wondered too. I was on a pump in the mid
80’s and I (and It) were a dismal failures. The nurses in the emergency room
kept saying "Here she is again." Looking back I can recognize some of the
problems. Diet was never mentioned. I checked my blood sugar fairly regularly
but not with the dedication that I now do. When my pump failed, I called the
company that manufactured the pump (now out of business) and reached a Psycho
freak who was so thrilled that there actually was a college named Bates that he
sent the replacement to the wrong address. Nobody had explained what to do if a
pump failed so I ended up in the emergency room with my blood sugar hitting
over 700. Thanks to the internet I’m much more aware. I’m now being urged to go
back to pumping and am having a hard time deciding.
Mary

By: Hilton Walter

Hilton Walter — Mon, 15 Aug 2005 03:50:30 +0000

thanks a bunch joan!!!!
didnt know folic had anything to do with aneamia?hum.i do take pain
powder,that works ok,but
once a month i have to stop it(you know what blood thinners do to that) i’m
43.pre-mental.i
prob should not have gone off the Lecithin.you know alot girl.i feel
blessed to be here.i cant believe for 30 yrs i didnt hardly have a grip on
this.thanks again to you and all here.
sharon

thanks for the name of the ref books,i have been thinking of which ones
are
the best and i will
try those.Funny you mentioned Lecithin havent heard about that in yrs,i
use

to take that yrs
ago.is that good for aches in the legs i can’t remember.i have a time with
my legs(esp once a
month).anything good for that other than an RX?i dont need anymore of
those
if i can help it.
thanks,
sharon >>
Hi Sharon:
Lecithin is more for the brain function
L-arginine is GREAT for leg cramps…..whatever and however it works after
being on it for 3 days, I actually slept without being woken up with my
calves stiff as boards and my toes tied in knots. So, if nothing else, I’m
pretty religious about taking my vitamins. That list I gave is what I take
myself.
Dr. Prendergrast - Dr. Joe at diabeteswell.com is an endocrinologist in
Calif. He’s the first endo to set up a web site for patients to so
self-management of their diabetes.
I’ve found him and all his staff a wealth of information, and he’s the one
that recommended the Heart saver formula
Vit C 500 mg 2x/day
Vit E 400 IU 2x/day
L-arginine 1000 mg 2x/day
low dose aspirin (81 mg) 2x/day
All of us need at least 1 mg of folic acid every day
if you tend to be anemic, and you can take iron -
I find chelated or "Easy" iron sits on the tummy better. Have to be
careful
cause it can cause constipation very easily.
Lecithin - 1200 mg daily
B-6 50 mg daily
Brewers Yeast - about 6 tablets give or take for the other B’s
Best way for any other supplements is to take a look at your overall
dietary
intake.
Keep yourself a diet log for a week - just write down whatever you put in
your face and take a look at it at the end of the week.
If you look at the food pyramid - how does it fit in with your intake?
See how you can tweak it without eating like a crazy person.
As far as joint pains….depending on how "old" you are….I’ll be 53 next
month….worked hard to get there…No matter what, sometimes the creakies
let you know they’re there.
Aspirin works well, and doesn’t have the profound effect on our kidneys
that
all the NSAIDs do - motrin, advil, ibuprofex, celebrex, vioxx……all keep
a
diabetics kidneys from working well and can shut them down. So, tylenol or
aspirin are the easy choices, just using good judgement on when to take and
how much. Can cause stomach problems, bleeding ulcers….so using enteric
coated aspirin so it dissolves in your intestines is a good idea. It also
acts as a blood thinner, so if you are using the low dose for the
Heartsaver
recipe, remember that when you take anything.
Happy Holiday!!! Joan :)))

By: Hilton Walter

Hilton Walter — Sun, 14 Aug 2005 11:35:09 +0000

jan
i know what you mean about those mashed potatos.i LOVE any potato.at my house it
use to
be how do i want my potato today,not if i want a potato.i even love how it
sounds.POTATO
(i know i am a sad case)
and finally to eat a tablespoon.PLEASE .potatos potatos how do i love thee.(just
let me count the ways)
i know that wasnt to me i hope you dont mind.have a Blessed Christmas.
sharon in Va (pumper for 8 months)30 yr diabetic

Jeana,
I have been having problems receiving messages and this one was posted at
12/14 10:30 p.m. and I just received it 8:50 p.m. 12/15 - didn’t know you
wrote this to me. My ISP did an upgrade between 12/11-12/15 and I just got 56

messages at once released to me. (Maybe it wasn’t egroups’ fault after all).

My hugsband’s employer is looking for a new ins. carrier and at present has no
contract, just a month-by-month basis. I wanted to go for an interview/listing
at Northwestern Univ. in Chicago but Humana is not on their plan. There is no
way we can afford 30% of $50,000-$500,000. Even 10% is WAYYYYY toooo much.
The coordinator at NWU said they haven’t done anyone over 55 either.

The advice I get is watch the potassium - have your level checked. Presently
(6 yrs) I am in the safe zone. As kidneys fail, the toxins are not peed out,
therefore potassium builds in the system and that regulates the heart rate and
can cause heart attack. I haven’t been able to give up my beloved mashed
potatoes, but have not had a whole banana since 8/1/94. I have a list of foods
and their amounts of P to keep a check on it. Kale has a whopping amount and I
didn’t give that up cuz I never ate it! Carbonated beverages are not good for
the kidneys and I was advised to eat more chicken and fish instead of red
meat. The water restriction is to not overwork damaged kidneys, but I don’t
know at what point that begins.

If your dr. specializes in kidneys, do dialysis patients see her, too? If not,
get the best at the endline who wants to prevent you from going that route.
The best drs have the most patients who die. Why? Cuz they wait until the last
minute to go to the best and can’t be saved.

If I think of anything else, I’ll post it.
Jan

By: Hilton Walter

Hilton Walter — Sun, 14 Aug 2005 03:27:28 +0000

hi jeana
yes i think the food is real limited too.i do alot better if i stick with:
chicken and lettuce is on top of the list.i try to jazz it up with
cucumber,pickle,a piece of crunchy bacon and a cherry tomato ,a few
coutons(i like the ceaser(sp)ones,and a couple
of bits of hard cheese,then i use about 2 tablespoons of salad dressing.for
breakfast i eat
yogert w/ wheat germ,or 1 slice cinn toast (not great for every day) and 2
scrambled eggs but
only using one yolk with a piece of swiss cheese over it.i do drink 2 cups
of coffee a day.i
drink ALOT of water,and i drink herb tea (i like the combo pack from
lipton)it has six flavors and
you get 3 of each.
boring so far huh?

dinner is my hardest because of the am high thing that is so easy if you
dont get that night meal
right.i can not eat protein at night or i pay BIGTIME.the "diabetes
resource center"in california
got me in touch with this tortilla factory that you can order the pita type
that is ok (i say ok)if
you like bread and again you can kindof (i say kindof) jazz up the taste a
bit.i hope this helps.
i find fruit is touchy with me.i love it but i have to bolus 2x as much for
what the lit states.
i love to bake and i get crazy this time of year.i made my pastor a coconut
cake and about
could have never gotten it to him.i love anything home made.there is also a
mag called "sucess
living with diabetes" which has some ok recipes.let me know if you need
anything.sorry so long.
hugs
sharon

Thanks Sharon. You really helped me feel not alone in this. I am going to
tweak my diet a bit and maybe that will help. Could you (or anyone) give
me
an example of the type of foods you eat. It seems now a days that there
isn’t much choice left. Most of the food I can think to eat has too much
fat, salt, sugar, protein, carbs, etc. What’s left? I need ideas…
Thanks, Jeana U
—– Original Message —–

> on my own i try to not eat much protein and limit my carbs as to not need
> as much insulin,as i know later i will creep up with the dosage.

By: colin_140

colin_140 — Thu, 11 Aug 2005 07:45:30 +0000

Hi Jeana:
I think your best bet is to register with diabeteswell.com patient management
program. They have a free trial period, and being that you’re in Alaska, it
will provide a better resource than just asking us what we do….our caloric
needs are different, so take a shot, they have nutritionist/CDEs on the
website who can help immensely in fine-tuning a nutrition plan just specific
for you…..Joan :)))

By: colin_140

colin_140 — Wed, 10 Aug 2005 15:30:09 +0000

Hi Jan:
Sounds like you may have corrupted some files….know how to do a scan disk??
Go to the Windows Help file and it will talk you through it….Joan:)))

By: colin_140

colin_140 — Wed, 10 Aug 2005 07:22:28 +0000

thanks for the name of the ref books,i have been thinking of which ones are
the best and i will
try those.Funny you mentioned Lecithin havent heard about that in yrs,i use
to take that yrs
ago.is that good for aches in the legs i can’t remember.i have a time with
my legs(esp once a
month).anything good for that other than an RX?i dont need anymore of those
if i can help it.
thanks,
sharon >>
Hi Sharon:
Lecithin is more for the brain function
L-arginine is GREAT for leg cramps…..whatever and however it works after
being on it for 3 days, I actually slept without being woken up with my
calves stiff as boards and my toes tied in knots. So, if nothing else, I’m

pretty religious about taking my vitamins. That list I gave is what I take
myself.
Dr. Prendergrast - Dr. Joe at diabeteswell.com is an endocrinologist in
Calif. He’s the first endo to set up a web site for patients to so
self-management of their diabetes.
I’ve found him and all his staff a wealth of information, and he’s the one
that recommended the Heart saver formula
Vit C 500 mg 2x/day
Vit E 400 IU 2x/day
L-arginine 1000 mg 2x/day
low dose aspirin (81 mg) 2x/day
All of us need at least 1 mg of folic acid every day
if you tend to be anemic, and you can take iron -
I find chelated or "Easy" iron sits on the tummy better. Have to be careful
cause it can cause constipation very easily.
Lecithin - 1200 mg daily
B-6 50 mg daily
Brewers Yeast - about 6 tablets give or take for the other B’s
Best way for any other supplements is to take a look at your overall dietary
intake.
Keep yourself a diet log for a week - just write down whatever you put in
your face and take a look at it at the end of the week.
If you look at the food pyramid - how does it fit in with your intake?
See how you can tweak it without eating like a crazy person.
As far as joint pains….depending on how "old" you are….I’ll be 53 next
month….worked hard to get there…No matter what, sometimes the creakies
let you know they’re there.
Aspirin works well, and doesn’t have the profound effect on our kidneys that
all the NSAIDs do - motrin, advil, ibuprofex, celebrex, vioxx……all keep a
diabetics kidneys from working well and can shut them down. So, tylenol or
aspirin are the easy choices, just using good judgement on when to take and
how much. Can cause stomach problems, bleeding ulcers….so using enteric
coated aspirin so it dissolves in your intestines is a good idea. It also
acts as a blood thinner, so if you are using the low dose for the Heartsaver
recipe, remember that when you take anything.
Happy Holiday!!! Joan :)))

By: Jennie Mui

Jennie Mui — Tue, 09 Aug 2005 12:40:59 +0000

Kathy, That’s near my highest. I went up to 14,000 when I was pregnant. I
had pre-eclampsia. Not fun. I’m glad it eventually came down. Before I
was pregnant, it was around 1,000. After pregnancy, I stabilized around
1,000. My second pregnancy I went up to 7,000. Much better but still a
high risk. After that pregnancy I went down to 1,000 again. Then I was put
on an ACE inhibitor (Altace) and my level went to 650. After a few years of
that it is now back up in the 1200’s even on the ACE. That’s why I was
getting discouraged. It seems different this time. Especially with the
clearance being lower. But I am not as worried as before because of all
your help. I will hang in there. Watch my diet better and get my A1c down.
Thanks everyone. Love, Jeana Ü
—– Original Message —–

> Kathy

By: Krystal Jesica

Krystal Jesica — Mon, 08 Aug 2005 12:47:34 +0000

Hmmmm…. What were ya doin wrong, Jan?
fp

By: Randolph Fawn

Randolph Fawn — Mon, 08 Aug 2005 06:35:19 +0000

Jeana said:
> I had a 24 hour urine test for protein and creatine
> clearance done creatine clearance 49.

Now that I have gone back to read what you said, your kidney function would be
at 49%. I forget if you are seeing a nephrologist, but if not - run, do not
stop and collect $200 (actually you might have to pay it). I started seeing a
neph at 35% and wish I had sooner. Also, YOU have up-to-date pump knowledge
going for you. I have just been getting pump educated since getting on the
‘net in spring of ‘99 after over 15 years of pumping and doing it wrong. Who
knows if I could be better off? Your goal is to maintain what you have and not
lose more function.(~_^) ( I like °Ü° better, but that’s yours)