cross post
I have some observations at the end of this post from a mom:
<<Tonight is one of those nights when I really fantasize about a CURE!! Just
cure this damned disease!! What a stress this is on our family! Sometimes it
seems like our whole lives center around Kristina and Kxx is under A LOT of
pressure! no… our lives center around DIABETES!!! and I hate it!! I hate
what it does to all of us… the guilt that I feel, the pressure on Kxx, the
feelings the other kids have of jealousy toward the attention (good or bad)
that Kxx gets because of this awful disease! I HATE having to go to the
doctor and 3 of the others wind up in big trouble cause they couldn’t sit
still long enough or behave long enough for me to talk to the doctor! If we
hadn’t had to be there in the first place, the youngest 3 wouldn’t have been
in trouble or even been expected to sit so still or be so quiet for
something so important! uuuggghhh!! Somebody please find some islets that
are safe for kids!! Oh man!! >>
1) More than likely Kxx hates the attention
2) " " hates the doctor visits
3) " " hates what *she* is doing to her family (major guilt trip)
4) The siblings hate DM too and how it is affecting them personally.
5) " " hate DM for what it is/may do to their sibling.
6) " " could resent Kxx later on in life since this is all they know.
7) The extra expenses could go into raising 4 kids
I clipped 3-4 prior paragraphs of this post. Kxx is being more or less
accused of non-compliance but the BGs are out of control and they have a
pump. There are such things as growth hormones, etc. For anyone saying they
are glad they have DM, I can just about bet they weren’t blessed with it as
a kid. If so, then I couldn’t be happier that they are so happy. Happy 4th
of July!! 8^)
November 16th, 2004 at 6:21 pm
<< For anyone saying they
are glad they have DM, I can just about bet they weren’t blessed with it as
a kid. If so, then I couldn’t be happier that they are so happy. Happy 4th
of July!! 8^)
>>
I agree. I’m not a whiner but a realist. Chrissy
November 18th, 2004 at 11:27 am
Good point Jan! Although I was DX @ 15 (23 yrs ago), I had my childhood
intact. My daughter is five and simply HATE’S it. We try to balance
restrictions with good control for children her age, but it still is tough.
To have to explain each time you have to deny her food/treats she wants is
difficult. To hear her scream from pain every time she gets a painful shot
is gut wrenching. I go into her room each night and take a bedtime reading
b4 I go to bed to make sure she won’t have a hypoglycemic episode. Her
little finger is already calloused from checking BG’s. She was DX’d 12/99,
and never said anything about the BG testing hurting her. My wife and I
figured it didn’t bother her yet, and were just sweating the injections. My
daughter did confide in me recently that they had hurt from the beginning,
and didn’t want to say anything to upset us! When she was DX’d, we received
alot of support and concern from family, friends, neighbors, and co-workers.
One co-worker in particular had spouted "She’ll be better off living a
healthier lifestyle". Although my wife and I didn’t challenge such a
statement, it couldn’t be farther from the truth. Her whole life was
affected by the disease. Medical treatments and guidelines have come very
far since I was DX’d, but it doesn’t mean a diabetic is healthier than
someone who doesn’t have the disease. We will treat her, and teach her not
to let it hinder her in anyway. We will get her the best medical care
available, and have her understand it’s just another disease, like Asthma.
I still can’t fathom saying I’m glad I got diabetes because I’m living a
healthier lifestyle than others. Everyone, diabetic or not, has a choice to
make in treating (or mis-treating) they’re bodies. Getting diabetes is Not a
wake-up call. It’s a curse in the tag-your-it pool of disease’s in life. All
the other debilitating diseases are more horrendous and tragic, especially
for children. For Diabetes, it’s the constant fight that wears you down with
a disease that seems to fight harder, each time you relax and think you make
progress. It’s the stress on the body the bears its toll over the years.
It’s the shear frustration each time you apply these guidelines and
procedures and get screwy BG’s. The infections that won’t go away with your
compromised immune system, and need antibiotics because you were around
someone with a bad cold. It’s the not knowing each year you get older if
you’ll receive any complications, as your internal organs age more rapidly
than those without the disease. You could get paranoid dwelling on it, or
you could disregard any thoughts like these and stick your head in the sand.
It’s wonderful to have a good attitude that you received diabetes, and will
not let it hold you back. To treat each BG reading as data and move on with
your life. But I can’t find anything GOOD about getting diabetes, nor be
glad I got it.
Kevin
For anyone saying they
are glad they have DM, I can just about bet they weren’t blessed with it as
a kid. If so, then I couldn’t be happier that they are so happy. Happy 4th
of July!! 8^)
-
November 18th, 2004 at 7:15 pm
Kevin,
I’ll say "Amen" for you since you left it off.
AMEN!
Jan
November 19th, 2004 at 3:15 am
<< But I can’t find anything GOOD about getting diabetes, nor be
glad I got it.
Kevin >>
Kevin,
Your letter was awesome. I didnt highlight the whole thing because it was
lengthy; but I totally agree w/everything you said. You put it so well!!
Diabetes is a lifelong who knows what will happen to you kind of disease. So
rather than restate everything you just said I will just say AMEN!!! You are
right on target. Chrissy